Every moment counts: a narrative for person-centred coordinated care for people near the end of life

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This resource sets out how good, coordinated – or integrated – care looks to people near the end of life and is written from their point of view. 

Every Moment Counts: a narrative for person centred coordinated care for people near the end of life is based on a literature review, bespoke research on the experience of bereaved carers, coproduction with people with experience, including carers and professionals and a workshop with national organisations, it describes some critical outcomes and success factors in end of life care, support and treatment from the perspective of the people who need that care, their carers and families. 

One of the challenges highlighted is that individuals working to support and care for the person are often generalists who may not have the confidence – or the training and preparation – to open up conversations about choices and preferences. Yet Every Moment Counts shows these are vital to the people and carers in question. Every Moment Counts outlines five themes that people say are key to coordinated care near the end of life. These are summarised in the defining statement: “I can make the last stage of my life as good as possible because everyone works together confidently, honestly and consistently to help me and the people who are important to me, including my carer(s).”

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